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Intersex Voices: Lianne Simon (mixed gonadal dysgenesis)


My name is Lianne Simon. I’m a Christian, a housewife, and an author. I also have a condition called mixed gonadal dysgenesis. Some of my cells have a Y chromosome, and some of them don’t. It resulted in a difference of sex development, mild heart and kidney malformations, and a small jaw. As a child I was tiny and frail and uncoordinated. At age nine, I was about the same size as my six year-old sister. I’ve been on hormone replacement therapy for most of my life, and I also take meds for my thyroid and for my adrenals. As a young adult I agreed to have surgery, which promised to allow me to have vaginal intercourse. But, after five years of unsuccessful dilations, and two weeks near death in the hospital, I was worse off than before I’d started...

But I met a man who didn’t care that I had a difference of sex development, one who thought I shouldn’t be ashamed of my body, and you know, he was right: No Body Is Shameful™. ‘Sin originates in the heart, not in the body.’ So, we got married and we’re working on the happily ever after part. But, as a writer I hope to help raise awareness of what it means to grow up with a body that’s not entirely male or female, and how you can overcome some of those issues. Thank you.

Read more and watch video (runs 2:39): Interface Project: Lianne Simon (2012)


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