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Intersex Voices: Lynnell Stephani Long (Partial Androgen Insensitivity Syndrome-PAIS)


Lynnell Stephani Long has Partial Androgen Insensitivity Syndrome (PAIS) and was assigned a male gender at birth. Testosterone was prescribed by doctors to control feminization at puberty--though she was not informed of her intersex condition. As an adult, Lynnell eventually discovered her condition, began taking estrogen, and transitioned to a female gender.

Years ago I would not have had the courage to write my story. I was too ashamed to tell anyone else my "secret" or the family’s secret...

I was born June 11, 1963 in Chicago’s Cook County Hospital. I found out 37 years after my birth that I was born with severe hypospadias, and a bi-fid scrotum. Surgery was performed at birth, leaving me with a micropenis and undescended testes. My labia were fused to form an empty scrotum....

At 14 while other boys in High School were beginning to become young men, my voice got higher. I started growing breasts.

Read more: A Girl Named Steve (Libido: The Journal of Sex and Sensibility)

Because I was never male, it was easier being a woman. Everything came naturally. For years I watched men and then tried to impersonate them. When Lynnell was re-born, I felt like I was given a second chance in life. My philosophy on life changed. My new philosophy is; Everything happens for a reason. In life there will be disappointments, but there will also be achievements. I will make mistakes, I'm not perfect. It's what I do with the lessons of those mistakes that will make me a better person. My happiness is of the utmost importance. With love, there is no room for fear. Have faith and all will be well.

Read more: Intersex (eTransgender, posted January 2007, original source unknown)

Even today, in 2003, I am amazed at the number of people of color who do not know what Intersex is. It incenses me that people think being Intersex is a 'white' thing...

I strongly believe people of color need to educate themselves. We need to step outside myths and stereotypes. If a child is born with a small penis, that child may be Intersex. If a girl is born with an enlarged clitoris, chances are she is Intersex. There is nothing to be ashamed about. There is no reason to hide the child or try to get that child fixed unless the child needs medical treatment.

Read more: Race and the Intersexed (Windy City Times, June 2003)

There are a lot of different organizations that have taken on the responsibility of educating John Q. Public on Intersexuality. But sometimes the methods used to educate white America aren't helpful to people of color.

Read more: Intersex Awareness Day (Windy City Times, 2004)

You know, my mother was a minister ˆ God bless her soul ˆ and there were times when she preached against everything that I am. Her God hated me just because. I didn't have a chance with her God. But I learned to have faith in a God of my understanding: A God that loves me because of who I am, not in spite of it. I'm not trying to get all sanctified on you. All I am saying is if you find yourself living in fear give God a chance. And tell her I said hello!

Gender: God Based, Not Fear Based (Wiindy City Times, March 2004)

Being poly, for me, isn't about having multiple sex partners-; although that is a perk-; it's about sharing love, spirituality, compassion, affection, intimacy, strength, hope, and myself, with more than one woman.

Read more: INTER-SEX Polyamory (Windy City Times, February 2001)


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